Hi!

Regardless if patient advocacy is in your or your clients' remit, we communicators still work with patients and patient advocacy organizations all the time -- from storytelling and disease education to advisory boards, clinical trial communications, research initiatives, employee engagement, and beyond.

But the role of patient advocacy has evolved, and so should the way we approach those relationships.

Tomorrow’s Comm Convo will bring together leaders from the Cystic Fibrosis Foundation, Pulmonary Fibrosis Foundation, Lupus Foundation of America, and Alagille Syndrome Alliance to explore how communicators can help build patient engagement that is thoughtful, productive, and appropriately structured from the start.

T2B August Comm Convo: Rethinking What We Ask of Patients

🗓️ Tomorrow, Wednesday, August 26th
🕐 1-2 p.m. ET / 10-11 a.m. PT / 6-7 p.m. BST
📍 Zoom

​Register to join us.​

Free for T2B Pro and Student members; $40 for Basic members

We’ll dig into:

• The reality of what we're asking patients to do. Are we seeking their voice through lived experience, their input on something already developed, or their influence on what the organization decides to do?
• What makes an engagement worth the patient’s time. We’ll talk compensation, expectations, transparency, credit, follow-through, and how communicators can make the internal case for the resources meaningful engagement requires.
• How to build stronger relationships with patient advocacy organizations. We’ll look at what sustained partnerships can make possible, when to involve advocacy colleagues, and how communications can lead, support, or step back depending on the situation.

Joining us:

• Kathryn Brown, SVP, Chief Communications & Marketing Officer, Cystic Fibrosis Foundation
• Jennifer Mefford, Chief Partnerships Officer, Pulmonary Fibrosis Foundation
• Louise Vetter, President & CEO, Lupus Foundation of America
• Erin Murphy, Global Strategy & Partnerships and Communications, Alagille Syndrome Alliance + T2B Patient Advocacy & Engagement Roundtable Member (Moderator)

This Comm Convo will give us a shared foundation for forthcoming T2B Patient Advocacy & Engagement Roundtable programming, where we’ll go deeper into the practices, policies, and models that support meaningful patient engagement.

See you tomorrow!

Lynnea