What Do Patient Advocacy Groups Actually Need From Biopharma Comms?

Published about 1 month ago • 1 min read

Hi!

Patient organizations are the closest link to the communities biopharma aims to serve. They see firsthand how messaging lands, including where it resonates, where it misses, and where it creates unintended friction.

Our upcoming Patient Advocacy & Engagement Roundtable event brings together leaders across patient advocacy, healthcare communications, and patient-centered innovation to share how biopharma communications are experienced on the receiving end.

What Patient Advocacy Organizations Actually Need From Biopharma Communications

📅 Friday, April 17th @ 12-12:45 p.m. ET / 9-9:45 a.m. PT / 4-4:45 p.m. GMT

Register here

(Exclusive to T2B Pro and Student members)

We’ll discuss:

How patient organizations interpret and prioritize biopharma messaging
Where communications feel grounded in patient reality, and where they don’t
Common missteps that weaken trust with patient communities
What meaningful collaboration looks like in practice
How to incorporate patient stories responsibly and thoughtfully

Meet our panelists:

💬 Dr. Robyn Schlicher, Founder & CEO, BeaconDx — founded a diagnostics company after navigating her own experience with undiagnosable illness
💬 Kimberly Haugstad, President & CEO, RareRising — leads RareRising and has spent years advancing rare disease advocacy, informed by her experience as the parent of a child with a severe rare condition
💬 Erica Bersin, President, ERO Health Communications & T2B PA&E Roundtable Member (Moderator) — a seasoned healthcare communicator whose perspective is also shaped by living with relapsing multiple sclerosis

This discussion will raise concepts relevant to all of us working in biopharma comms, no matter the role.

Hope everyone has a fantastic weekend!

Lynnea

P.S. - We just announced registration details for our second annual Biopharma Comms Forum, Clarity at the Flashpoint, in Boston on June 11th. Sign up today!

What Biopharma Communicators Are Saying About Burnout

Hi! Burnout is often discussed as an issue for individuals to manage. But during our April Comm Convo, Beyond Self-Care to Structural Change, the discussion focused on the systems, expectations, and leadership habits that shape how sustainable our jobs are. Our speakers Arran Attridge (Attridge Communications), Nikki Little (Franco), Amanda Guisbond (Iambic), and Barbara Palmer (Broad Perspectives Consulting) discussed how burnout develops inside comms teams, why urgency drives our...

1 day ago • 2 min read

Last Day to Take the AI in Biopharma Communications Survey

Hi! A quick reminder that T2B’s inaugural AI in Biopharma Communications Survey closes tonight. Take the survey We’re exploring how communicators are using AI in practice, what tools and governance structures are in place, where friction remains, and how the role itself may be changing. The goal is to create a benchmark our profession can actually use in conversations about policy, training, resourcing, and the future of the function. Thank you to everyone who has already taken the time to...

2 days ago • 1 min read

How Is AI Changing Our Role as Biopharma Communicators?

Hi and happy Friday! First, I want to flag that this is not one of those surveys where you can watch from afar and see what everyone else says. Yes, we have about 1,600(!) members in the T2B community, but we are calling on each of you to set aside 10 minutes to share your individual experience, hopes, fears, challenges, and expectations around AI in our profession. If we want this inaugural AI in Biopharma Communications Survey to be meaningful and instructive, we need as much data as...

5 days ago • 1 min read

T2B Monthly