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T2B Monthly

What Do Patient Advocacy Groups Actually Need From Biopharma Comms?

Published 3 days ago • 1 min read

Hi!

Patient organizations are the closest link to the communities biopharma aims to serve. They see firsthand how messaging lands, including where it resonates, where it misses, and where it creates unintended friction.

Our upcoming Patient Advocacy & Engagement Roundtable event brings together leaders across patient advocacy, healthcare communications, and patient-centered innovation to share how biopharma communications are experienced on the receiving end.

What Patient Advocacy Organizations Actually Need From Biopharma Communications

📅 Friday, April 17th @ 12-12:45 p.m. ET / 9-9:45 a.m. PT / 4-4:45 p.m. GMT

​​Register here​​

​(Exclusive to T2B Pro and Student members)

We’ll discuss:

  • How patient organizations interpret and prioritize biopharma messaging
  • Where communications feel grounded in patient reality, and where they don’t
  • Common missteps that weaken trust with patient communities
  • What meaningful collaboration looks like in practice
  • How to incorporate patient stories responsibly and thoughtfully

Meet our panelists:

💬 Dr. Robyn Schlicher, Founder & CEO, BeaconDx — founded a diagnostics company after navigating her own experience with undiagnosable illness
💬 Kimberly Haugstad, President & CEO, RareRising — leads RareRising and has spent years advancing rare disease advocacy, informed by her experience as the parent of a child with a severe rare condition
💬 Erica Bersin, President, ERO Health Communications & T2B PA&E Roundtable Member (Moderator) — a seasoned healthcare communicator whose perspective is also shaped by living with relapsing multiple sclerosis

This discussion will raise concepts relevant to all of us working in biopharma comms, no matter the role.

Hope everyone has a fantastic weekend!

Lynnea

P.S. - We just announced registration details for our second annual Biopharma Comms Forum, Clarity at the Flashpoint, in Boston on June 11th. Sign up today!

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